Amy's story

If you have endometriosis, I strongly urge you to take actions as soon as possible to prevent from further spread. TIME is really crucial, so are good doctors.

I was diagnosed of having three "chocolate cyst" in my right ovary back in Oct. 2010 when I had abnormally bleeding between periods. I was 26-years-old and unknown of any reproductive organ problems. I was shocked by the bad news and asked many question about the “chocolate cyst”. That’s what my OB/GYN doctor called it. However, she seemed like it wasn’t a serious problem as long as it’s benign. I was having severe pain on my right side of lower abdomen every time I have my period as well as moderate pain on other days. This was really unusual, I thought. I switched to another OB doctor, she was totally lack of knowledge on chocolate cyst which I realized afterward. She prescribed birth control pills to me and said it’ll help me relievie my pain. However, she said my chance of getting rid of it was 1%. She was unwilling to talk about it with me and didn’t know how to answer my questions. I spent 4 months with her and switched to another doctor again and was hoping to find a better doctor to save my life. My third obg doctor told me that I had endometriosis and it’s going to be hard to get pregnant until the cyst was removed or shrink it by taking birth control pills continually. I took pills for 8 month without significant success. I decided to stop the pills and tried to get pregnant. Eventually, my plan failed. My doctor told me even I have the surgery done, it’ll come back again and also it’ll spread all over the body. I was terrified and felt like I was waiting to die. I’m young and I have a lot of things need to be done. I couldn’t believe the truth.

I started to do a lot of research on endo because I believe there must be a solution out there. I typed "endometriosis expert" on Google, and checked out each page it popped up. I opened Dr. Seckin’s website and was delighted that he was a world class specialist in endometriosis and he’s in NYC, too. My husband was very happy, too. I’m not the only one who suffering from the disease but also my husband is suffering from seeing me tortured by the disease. He’s taking care of every aspect of my life. I must say I’m the luckiest one in the world. In early 2012, we felt we have HOPE. I visited Dr. Seckin in March. He was so nice and patient to go over the disease with me. I had long conversion with him without any stress. He’s very knowledgeable about it and confident of treating the disease. I strongly believe I found the right person to take care of my case. The MRI result showed I have 5cm cyst on my right ovary. Dr. Seckin said it needs to be taken out. My insurance didn’t cover out of network expense, but it’s expiring in August and I’m able to renew it with out of network coverage. I waited another five months and went back to schedule my laparoscopy surgery. Finally, I had surgery done in September. On my surgery date, a famous Chinese doctor from Beijing visited Dr. Seckin and witnessed the whole process of my operation. I’m from China, too. I’m sure I’m the lucky one that I came to NYC and meet the best doctor who is recognized internationally. Other prestigious doctors from other countries come to visit Dr. Seckin and learn the advanced techniques he uses and processes he applies in surgery. I was so happy that my first surgery was done by Dr. Seckin.

I recovered from surgery within few days and had to go back to see Dr. Seckin. Every staff person in his office is very nice. They truly care about you and your wellness, I must say. The laparoscopic diagnosis was frightening to me; I had endometriosis tissue in many part of my body. Even though Dr. Seckin removed most of adhesions and cysts from my pelvic sidewall, ovary, ureter and bladder, he said I might need another surgery if I get symptoms on other part of organs. He showed me pictures of my heart, lung and so on. They were all infected with the disease. My seriousness is on 8th scale out of 10. I was almost passed out when I heard that. I felt I’m dying soon. He consoled me that my life is going to be changed because he killed the “snake." He said those adhesion might go away by itself and I’ll get pregnant but need to take birth control for three months. I was relieved a little more. Whatever the result is, I just want to get pregnant because my husband really likes children even though he didn’t push me at all.

If you have endometriosis, I strongly urge you to take actions as soon as possible to prevent from further spread. TIME is really crucial, so does good doctors. As Dr. Seckin says, “Early intervention is the key to effectively resolving this disease." I share my experience with you because I want to guide you to right direction on treating the disease, since personally I had excellent experience with Dr.Seckin and I hope all women with endo would be totally cured. NO MORE SURFFERING, WE'VE HAD ENOUGH.

I deeply appreciate Dr. Seckin and his staff on dealing with my case. The world needs more doctors like you. Thank you.