Lakshmi [along with Dr. Seckin] has become the driving force behind the Endometriosis Foundation of America, which together with researchers at MIT, is pushing to develop new treatments for the illness.
Cookbook author Padma Lakshmi is hoping to raise awareness and help tens of millions of women who suffer from endometriosis, a painful illness that can cause infertility.
The 39-year-old model and host of reality cooking show "Top Chef," who is pregnant with her first child, has been talking about her two-decade struggle with the disorder, in which tissue that normally lines the uterus migrates to other parts of the body, causing pain and swelling.
At the Massachusetts Institute of Technology (MIT), she said her decision to go public with her struggle was prompted by a desire to help young women avoid the suffering she has experienced.
"I remember school dances that I didn't go to, mid-terms I failed and family occasions that I missed," she said. "Only now do I realize how much of my life was mangled and distorted by this illness."
Lakshmi has become the driving force behind the Endometriosis Foundation of America, which together with researchers at MIT, is pushing to develop new treatments for the illness.
Linda Griffith, professor of biochemical engineering at MIT and former recipient of a MacArthur Foundation "genius grant," has raised $10 million in public and private grants for the new Center for Gynepathology Research to study the illness.
Griffith, who also suffers from endometriosis, which is believed to be a chronic inflammatory condition, said little is known about the illness that affects up to 90 million women worldwide.
Surgery is often required to remove scar tissue that can attach itself to the ovaries, bowels and lining of the abdominal cavity.
"It's like roots in a garden, with the womb being the garden," Lakshmi said. "Endometriosis attaches itself like weeds. You have to clean under the rocks and behind the fence and through the trees and get every last bit of it out."
Lakshmi, clad in a black designer mini-dress, captivated the crowd of MIT students and faculty by relating her story with a mixture of passion and humor.
After multiple surgeries for the condition she is now in the second trimester of her pregnancy and is due to give birth early in 2010.
Griffith said awareness of endometriosis is in its infancy, similar to where breast cancer stood in the early 1970s.
At that time, Betty Ford, wife of President Gerald Ford, was credited with breaking down taboos when she went public with news of her mastectomy in 1974.
Lakshmi hopes other celebrity sufferers, who include comedian Whoopi Goldberg, will lend their weight to her campaign by continuing to speak out publicly.
"I guard my privacy closely, and it seems contradictory when I'm standing here, talking about my period," she said. "But you always have to remember the greater goal. What's more important -- my privacy, or the lives of women? I chose the latter."
I’ve seen many obgyns over the years explaining my monthly symptoms during my period...but eventually it became a daily struggle with these pain. It feels like a poke here and there near my right pelvic region. I was given birth control pills for the past ten years but honestly, it didn’t help at all. I was in bed whenever I had my period. I was previously sent to GI doctors for possible appendicitis but it was ruled out from imagings…
Dr.Seckin is so much more than a surgeon. His passion for helping endometriosis sufferers and determination to improve the quality of life in all of his patients is undeniable. I remember when my gynecologist first told me I needed a laparoscopy. Her exact words were "I can do the surgery, but if you were MY daughter- I'd send you to him." From the first day I met him he took the time to explain endometriosis to me since I knew…
I was there for hysterectomy but then I found out that I also had endometriosis.My both surgeries went excellent and I feel great!.I am so thankful to Dr.Seckin and all his team for making my journey smooth!
I am a physician who suffered from deep infiltrative endometriosis. I needed laparoscopic surgery, so I went to see my former gynaecologist and he performed the procedure (a surgery which he supposedly does hundreds of times a year) last November. I had severe pain again when I had my period in January and was advised to go on taking a low hormone dose anticoncipient pill. My symptoms came back quickly and got worse in a few months’ time. I went…
After years of excessively painful periods, a serious loss of quality of life, and a series of uninformed and uninterested doctors, Dr. Seckin and Dr. Goldstein turned my life around. I was told I woke up from my surgery almost a year ago with a smile on my face, and I haven't stopped since. Before I heard of Dr. Seckin, I was experiencing almost daily terrible pain to the point where I had difficulty walking, inability to eat, inexplicable weight…
Dr Seckin and his team gave me back my life! Tomorrow will be 1 month since my surgery and I feel great. Dr. Seckin, Dr Liu, and Dr Goldstein are not only beyond words talented and amazing Doctors, but they are also genuinely wonderful and caring people. I cannot say enough great things about Holly, Asiye and Kim as well. They were all caring, kind, patient, and took the time to listen to me and explain anything I needed to…
Dr. Seckin and his staff spared me from years and years of heavy periods and unbearable endometriosis pain. After having surgery with him (my first) I can now function like a regular human. No more eating NSAIDs like candy and calling out sick from work. Thank you, Dr. Seckin!