Stacey Missmer - The key window for diagnosing endometriosis to commence early intervention

Stacey Missmer - The key window for diagnosing endometriosis to commence early intervention

EFA’s Sixth Annual Medical Conference: Ending Endometriosis Starts at the Beginning

The key window for diagnosing endometriosis to commence early intervention

Stacey Missmer, ScD


We have started with excellent lectures from Dr. As-Sanie focusing on clinical science, Dr. Taylor focusing on bench science and now I am going to come in with this question of key window for diagnosing endometriosis from an epidemiological perspective. This has been repeated across the last three days. We know that this being the largest study to date of 1400 women, the Global Study of Women’s Health looking at delayed diagnosis. We know that on average internationally it is about seven years. We know that the majority of women with endometriosis report that their symptom onset was in adolescence or very early adulthood. Epidemiologically this gets us to thinking about what characteristics may there be in adolescence that are influencing risk? One of my primary sources of data is a very large prospective cohort of adult women. There are almost 120,000 nurses enrolled in the Nurses’ Health Study II. They were enrolled in 1989. When they were enrolled the youngest was aged 25 and we have now been following them for more than 25…

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    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

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    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…