National Infertility Awareness Week

National Infertility Awareness Week

Dear Infertility,

Listen up!

We have kept up a professional relationship for some time now. For the past few years, I have been working as a counselor and advocate with those whose lives you have impacted most. But, it has been awhile since I addressed you personally. I have some things to say to you.

I will be turning 38 years old this August. Exactly ten years ago, you were the center of my life. I had tried conceiving naturally for some time with no luck. I had pushed my gynecologist to send me to a fertility specialist, even though she stated that I was “too young” to have fertility issues. I had gone through extensive and invasive testing with my reproductive endocrinologist and came out with more questions than answers. I had an exploratory laparoscopy to see if endometriosis could be the cause of my trouble conceiving. After my surgery, I was told my endometriosis was mild and would not be an issue. I was assured I could now most likely conceive naturally.

You, Infertility, had other plans. You kept persisting. You tried to break me.

Eventually though, after multiple treatments, I was able to conceive my daughter. While I was so grateful and felt so lucky that she was in my life, I tried hard to expand my family further. It wasn’t until then that I realized not only did I have endometriosis, but I also had a genetic defect with my eggs. This issue was causing me to miscarry. The next few years were filled with more fertility treatments, IUI’s, IVF’s, embryo genetic screenings, pregnancy losses and exploring options such as embryo donation and adoption. They were also filled with more pelvic surgeries, as my endometriosis was causing many serious health issues and greatly impacting my quality of life.

I spent years trying to fight you, Infertility, trying to beat you, all the while feeling beat up. When I could not fight you any longer, physically, emotionally or financially, I went on to spend years healing. I found hope and built a life around the acceptance of my new reality. Even still, my other unfortunate reality was that I couldn’t totally forget about you. Endometriosis, even with the best of care (which I was fortunate enough to have), is a chronic condition with no cure that I am mindful of daily. Also, while it is not easy for me to get pregnant when I do, I am prone to miscarry. These physical reminders of you are still with me daily, causing stress, loss, and anxiety.

Still emotionally, I am in a much better place compared to where I was in the midst of treatments. But the scars from the torture you inflicted still twinge or ache where the wounds run deep. As I help patients who are struggling, I see how you work your destruction in the lives of others. Infertility, you are relentless in nature. You are exhausting. You deplete your prey of emotional, physical and financial resources. You symbolize hopelessness, powerlessness, and helplessness. You embody uncertainty and anxiety. You are a deep rooted grief that constricts the breath and clenches the heart. In your path of destruction, you often leave behind relationships, opportunities, happiness and community. Yet, you have a way of doing this quietly and privately, eliciting shame and capitalizing on the societal stigma of it all.

I want to let you know, despite all of this, Infertility, I have survived you. I also see my patients, friends and fellow advocates also survive you. Some of them do this by building families through fertility treatments, adoption, surrogacy or by using egg, sperm or embryo donations. Some of them do this by building a meaningful life that challenges the idea that one needs to be a mother or father to have a life of meaning. I am especially proud of those that use their pain to help others who may feel hopeless and alone. These advocates show their wounds and scars not only to fellow patients but also publically to chip away at the stigma and even to congressional aides and representatives so that patients enduring your wrath can have every support they need.

In a little over a month, I will go again to Washington D.C. to advocate for patients everywhere with RESOLVE: The National Infertility Association. Every time I go, I feel like I take back a little bit more of the power you took away from me all those years, as well as the power you take away from my patients. Every time I go, I feel like you, Infertility, get a little bit smaller, a little bit weaker. Even though I medically cannot give back what you rob from so many and even though I cannot heal the grief that those you touch struggle with, I can at least fight the stigma that you have crafted and advocate to give those struggling more tools and support. My hope is that many others will decide to join me. The more voices we have fighting you, the stronger we will be.

Infertility, I can’t say that I am grateful for you. What I will say is that I am grateful for the friends I have met and the empowering experiences I have had because of you, or maybe in spite of you. I have tried to take a lot of positive things away from what you have taken away from me. I have witnessed others come together in your name to support one another and to heal. I have seen those deeply impacted by you learn to thrive after unspeakable loss and hardship.

This week is National Infertility Awareness Week. As it comes to a close, I am reminded that although you are a devastating force, Infertility, you are no match for the human spirit which has the incredible ability to endure, persevere and ascend.

 

Sincerely,

Casey Berna


 

Casey Berna is a patient of Dr. Seckin’s and an endometriosis and infertility counselor and advocate. To learn more about her story and her practice go to www.CaseyBerna.com.  

Our office is located on 872 Fifth Avenue New York, NY 10065.
You may call us at 646-960-3040 or have your case reviewed by clicking here.

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Patient Reviews

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  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

  • Emi O

    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…

  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…