Moms With Endo: Early Detection for Daughters Is Key, Says Expert

Moms With Endo: Early Detection for Daughters Is Key, Says Expert

As many women with endometriosis can attest, a lengthy delay in diagnosis is one of the most vexing aspects of the disease.

A decade or more wait after the initial onset of endometriosis symptoms isn't uncommon, as doctors can miss the mark, pointing instead to IBS or appendicitis.

Erin McCloskey knows. The 31-year-old Prince Edward Island native says beginning at age 17, she experienced crippling endo symptoms and wasn't diagnosed until she turned 29, when a laparoscopic procedure unearthed an endometrioma or an endometriosis-filled cyst inside of her ovary. Now, she plans to make sure her 1-year-old daughter, Lucy, won't have the same cross to bear.


“Because I have been in horrible pain for years," McCloskey tells The Blossom, "my first concern before I even got pregnant was that I was scared to have a daughter and did not want her to grow up like this. Once I had a daughter, it really started to sink in.” McCloskey says she also has two great aunts and a cousin with the disease.

How soon should women like McCloskey turn a watchful eye to their daughters?

With a family history already present, Seckin says monitoring symptoms should start right at home.

"The dialogue between mother and child is really crucial," EndoFound founder, and endometriosis specialist, Dr. Tamer Seckin tells The Blossom. "Today's kids are so intelligent. They deserve to be told way before puberty about what a normal period is like. If they are aware, they will be able to recognize and express themselves better about menstrual sensations that are out-of-the-ordinary. You don’t want to create an unnecessary sense of fear in a child, but you want to monitor symptoms carefully as girls will first experience endo symptoms before they are sexually active.”

As young girls begin regular menstrual cycles, Seckin says an initial, conservative approach to pain is best.

“The first line of defense is [administering] NSAIDs," he shares. What if that doesn't yield any results? "Then, screening for other causes of pain such as a septated vagina, or a blockage in the vagina such as an imperforate hymen, which may stop menstrual blood from flowing out. Abdominal sonogram. And in certain cases MRI's. Surgery really should be a last resort. And if surgery is to be done, as much detail as possible needs to be documented, whether it be in photographs or video, so that the child doesn’t have to endure countless surgeries.”


She'll have many years to go, but McCloskey says she already has a talk all planned out with Lucy. "As soon as my daughter is old enough to understand what her period is and the pain that can be associated with it, I want to explain everything to her," she shares, "and make sure she is comfortable talking about it with me. I want to give her what information I have. If I would have found someone who could have suggested endometriosis earlier, I could have received the care I needed earlier, and the disease would not have progressed as bad.”

https://www.endofound.org/moms-with-endo-early-detection-for-daughters-is-key-says-expert

 

 

 

Our office is located on 5th Ave and 68th NY, NY.
You may call us at 212-988-1444 or have your case reviewed by clicking here.

<< Previous Article
Inflammation: A Possible New Source for Early Detection of Endometriosis
Inflammation: A Possible New Source for Early Detection of Endometriosis

Endometriosis, a disease that is said to affect one in ten women in the United States, and is often characterized…

Read more >

Next Article >>
Dr. Tamer Seckin: We Are in the Midst of an Endometriosis Revolution
Dr. Tamer Seckin: We Are in the Midst of an Endometriosis Revolution

By Sheena FosterPhoto credit: Getty Images The revolution will be televised!Ten years ago, Dr. Tamer Seckin and Padma Lakshmi joined…

Read more >

Patient Reviews

Write a review
  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Jason Curry

    My wife had her laparoscopic excision surgery to remove endometriosis with Dr. Seckin on Jan 30, 2014. She doesn't write online reviews so I'm writing this on her behalf. I accompanied her with each office visit she had. The staff--Lucy and Kim, are very friendly, warm and professional. Dr. Seckin was excellent in every capacity. He spent a lot of…

  • Liz Filippelli

    He is an awesome doctor who saved my daughters life from debilitating endometriosis..she knew instantly upon awaking from surgery that she was better..that wad May and no complaints only praises for Dr. Wonderful Seckin!!

  • Karen N

    I was diagnosed with Endometriosis at 19. I saw several Endometriosis "Specialists" since then, had a few laproscopic surgeries to "remove" the endometriosis and continued to be in pain. I had a hysterectomy in 2012 and was told this would stop the pain once and for all. No such luck! Tired of spending days in bed with a heating pad,…

  • Lauren Rodriguez

    I researched and found Dr. Seckin after dealing with years of doctors who couldn't help me or refused to go the extra mile for their patients. I have to say I am truly blessed to have found such a compassionate and talented doctor. He is exquisite with everything he does, and both his team at the office and surgical team…

  • Kellya Vespa

    Dr. Seckin is a very skilled surgeon. There are not many doctors like him that truly understand the effects of endometriosis. I am lucky to have found him. The staff is wonderful too.

  • Meg Connolly

    Dr. Seckin truly LOVES what he does and cares about his patients from the bottom of his heart. My life has already changed in 3 weeks and I couldn’t be more grateful. Should I ever need another operation for endometriosis, Dr. Seckin will be the one to do it. I recommend him to anyone I come across with similar problems…

  • Elisandra O

    Dr. Seckin is an amazing Doctor he is very compassionate, caring and he will be honest with you. He's been my doctor for 19yrs and I am so grateful to have someone taking care of me that knows what he is doing and knows the best way to treat each and every situation. I would definitely recommend him and his…