Moms With Endo:Early Detection for Daughters Is Key, Says Expert

Moms With Endo: Early Detection for Daughters Is Key,  Says Expert

As many women with endometriosis can attest, a lengthy delay in diagnosis is one of the most vexing aspects of the disease.

A decade or more wait after the initial onset of endometriosis symptoms isn't uncommon, as doctors can miss the mark, pointing instead to IBS or appendicitis.

Erin McCloskey knows. The 31-year-old Prince Edward Island native says beginning at age 17, she experienced crippling endo symptoms and wasn't diagnosed until she turned 29, when a laparoscopic procedure unearthed an endometrioma or an endometriosis-filled cyst inside of her ovary. Now, she plans to make sure her 1-year-old daughter, Lucy, won't have the same cross to bear.


“ Because I have been in horrible pain for years, " McCloskey tells The Blossom, "my first concern before I even got pregnant was that I was scared to have a daughter and did not want her to grow up like this. Once I had a daughter, it really started to sink in.” McCloskey says she also has two great aunts and a cousin with the disease.

How soon should women like McCloskey turn a watchful eye to their daughters?

With a family history already present, Seckin says monitoring symptoms should start right at home.

"The dialogue between mother and child is really crucial, " EndoFound founder, and endometriosis specialist, Dr. Tamer Seckin tells  The Blossom. "Today's kids are so intelligent. They deserve to be told way before puberty about what a normal period is like. If they are aware, they will be able to recognize and express themselves better about menstrual sensations that are out-of-the-ordinary. You don’ t want to create an unnecessary sense of fear in a child, but you want to monitor symptoms carefully as girls will first experience endo symptoms before they are sexually active.”

As young girls begin regular menstrual cycles, Seckin says an initial, conservative approach to pain is best.

“ The first line of defense is [administering] NSAIDs, " he shares. What if that doesn't yield any results? "Then, screening for other causes of pain such as a septated vagina, or a blockage in the vagina such as an imperforate hymen, which may stop menstrual blood from flowing out. Abdominal sonogram. And in certain cases MRI's. Surgery really should be a last resort. And if surgery is to be done, as much detail as possible needs to be documented, whether it be in photographs or video, so that the child doesn’ t have to endure countless surgeries.”


She'll have many years to go, but McCloskey says she already has a talk all planned out with Lucy. "As soon as my daughter is old enough to understand what her period is and the pain that can be associated with it, I want to explain everything to her, " she shares, "and make sure she is comfortable talking about it with me. I want to give her what information I have. If I would have found someone who could have suggested endometriosis earlier, I could have received the care I needed earlier, and the disease would not have progressed as bad.”

https://www.endofound.org/moms-with-endo-early-detection-for-daughters-is-key-says-expert

 

 

 

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  • Kim Molinaro

    Prior to meeting Dr. Seckin and reading his book, “The Doctor Will See You Now”, I knew little to nothing about endometriosis. I was led to believe that endometriosis was not a serious condition. I was told that the pain could be managed by taking the “pill”. I was told that the cysts on my ovaries were harmless. I was…

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    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

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  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Jason Curry

    My wife had her laparoscopic excision surgery to remove endometriosis with Dr. Seckin on Jan 30, 2014. She doesn't write online reviews so I'm writing this on her behalf. I accompanied her with each office visit she had. The staff--Lucy and Kim, are very friendly, warm and professional. Dr. Seckin was excellent in every capacity. He spent a lot of…

  • michele curcio

    Dr.Seckin has saved me! My quality of life has improved tremendously! I have my life back plus! I am pain free and with this struggle i had with Endo all of my life, it is incredible to be NORMAL! Ever ever ever so grateful! God bless this man!

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    My daughter was recently treated by Dr. Seckin for endometriosis and I feel blessed that she found Dr. Seckin. The surgery was such a different experience than the prior surgery performed by another physician. Her post operative recuperation was so much better, immediately from the recovery room to the time she was able to return to work. She has much…

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    He is an awesome doctor who saved my daughters life from debilitating endometriosis..she knew instantly upon awaking from surgery that she was better..that wad May and no complaints only praises for Dr. Wonderful Seckin!!

  • Karen N

    I was diagnosed with Endometriosis at 19. I saw several Endometriosis "Specialists" since then, had a few laproscopic surgeries to "remove" the endometriosis and continued to be in pain. I had a hysterectomy in 2012 and was told this would stop the pain once and for all. No such luck! Tired of spending days in bed with a heating pad, …

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