How to Find an Endometriosis Specialist

How to Find an Endometriosis Specialist

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Medically Reviewed by Kacy Church, MD

 

Few gynecologists have the skills and training to diagnose or remove endometriosis — chances are, you will have to search for one who does.

 

There are too many stories of women with endometriosis who were undiagnosed or misdiagnosed for many years.

Latia Lee, age 39, of Islip, New York, suffered for 23 years with undiagnosed endometriosis, a chronic disease in which endometrial-like tissue grows outside the uterus on various other organs. “My ob-gyn made me think my severe, debilitating menstrual cramps were normal, so I stopped asking about them. I thought it was normal to have my entire life revolve around my cycle. I even had a lung collapse, and the pulmonologist just said it was spontaneous,” says Lee. When the other lung collapsed, Lee knew she had to advocate for her own care. She researched online and found that she had just about every single symptom of endometriosis.

More research brought her to Tamer Seckin, MD, the creator of the Endometriosis Foundation of America, who finally made the right diagnosis. “I felt validated that I finally had an answer,” Lee says with palpable relief.

Why the Delay in Diagnosis of Endometriosis?

While an estimated 10 percent of women of reproductive age are affected by endometriosis, it takes an average of 7 to 10 years from onset of symptoms to diagnosis, research suggests.

What gives? There are several problems. There's a shortage of endometriosis specialists, and general ob-gyns lack knowledge about and training in the disease. In fact, says Lora Liu, MD, an endometriosis surgeon at Seckin Endometriosis Center in New York City, “there is not yet an official fellowship for endometriosis surgery.”

 

If You May Have Endometriosis, Do Your Research to Find Proper Care

If you suspect that your symptoms are related to endometriosis, get thee to a specialist right away. There is no need to suffer for years with no diagnosis, a misdiagnosis, or improper care.

Read More: Everyday Health

 

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Why does endometriosis go undiagnosed for as long as ten years?
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Founder of the Endometriosis Foundation of America, Dr. Tamer Seckin, explains to ABC news that the toughest question to answer…

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Patient Reviews

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  • Grace Larsen

    After years of excessively painful periods, a serious loss of quality of life, and a series of uninformed and uninterested doctors, Dr. Seckin and Dr. Goldstein turned my life around. I was told I woke up from my surgery almost a year ago with a smile on my face, and I haven't stopped since. Before I heard of Dr. Seckin,…

  • Nicole Novakowski

  • Jacqueline Galindo

    Dr Seckin and his team gave me back my life! Tomorrow will be 1 month since my surgery and I feel great. Dr. Seckin, Dr Liu, and Dr Goldstein are not only beyond words talented and amazing Doctors, but they are also genuinely wonderful and caring people. I cannot say enough great things about Holly, Asiye and Kim as well.…

  • Anna Lu

    Dr. Seckin and his staff spared me from years and years of heavy periods and unbearable endometriosis pain. After having surgery with him (my first) I can now function like a regular human. No more eating NSAIDs like candy and calling out sick from work. Thank you, Dr. Seckin!

  • Sarper Kocabiyik

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  • Sheena Wright

    I underwent surgery with Dr. Seckin in 2017 and have felt like a new woman ever since. If you have, or suspect you have endometriosis, Dr. Seckin and his compassionate team of surgeons and staff are a must-see.

  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

  • Emi O

    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…