How to Find an Endometriosis Specialist

How to Find an Endometriosis Specialist

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Medically Reviewed by Kacy Church, MD

 

Few gynecologists have the skills and training to diagnose or remove endometriosis — chances are, you will have to search for one who does.

 

There are too many stories of women with endometriosis who were undiagnosed or misdiagnosed for many years.

Latia Lee, age 39, of Islip, New York, suffered for 23 years with undiagnosed endometriosis, a chronic disease in which endometrial-like tissue grows outside the uterus on various other organs. “My ob-gyn made me think my severe, debilitating menstrual cramps were normal, so I stopped asking about them. I thought it was normal to have my entire life revolve around my cycle. I even had a lung collapse, and the pulmonologist just said it was spontaneous,” says Lee. When the other lung collapsed, Lee knew she had to advocate for her own care. She researched online and found that she had just about every single symptom of endometriosis.

More research brought her to Tamer Seckin, MD, the creator of the Endometriosis Foundation of America, who finally made the right diagnosis. “I felt validated that I finally had an answer,” Lee says with palpable relief.

Why the Delay in Diagnosis of Endometriosis?

While an estimated 10 percent of women of reproductive age are affected by endometriosis, it takes an average of 7 to 10 years from onset of symptoms to diagnosis, research suggests.

What gives? There are several problems. There's a shortage of endometriosis specialists, and general ob-gyns lack knowledge about and training in the disease. In fact, says Lora Liu, MD, an endometriosis surgeon at Seckin Endometriosis Center in New York City, “there is not yet an official fellowship for endometriosis surgery.”

 

If You May Have Endometriosis, Do Your Research to Find Proper Care

If you suspect that your symptoms are related to endometriosis, get thee to a specialist right away. There is no need to suffer for years with no diagnosis, a misdiagnosis, or improper care.

Read More: Everyday Health

 

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Patient Reviews

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  • Winnie Chan

    I’ve seen many obgyns over the years explaining my monthly symptoms during my period...but eventually it became a daily struggle with these pain. It feels like a poke here and there near my right pelvic region. I was given birth control pills for the past ten years but honestly, it didn’t help at all. I was in bed whenever I…

  • Rachel Grobman

    Dr.Seckin is so much more than a surgeon. His passion for helping endometriosis sufferers and determination to improve the quality of life in all of his patients is undeniable. I remember when my gynecologist first told me I needed a laparoscopy. Her exact words were "I can do the surgery, but if you were MY daughter- I'd send you to…

  • Esin Kocabiyik

    I was there for hysterectomy but then I found out that I also had endometriosis.My both surgeries went excellent and I feel great!.I am so thankful to Dr.Seckin and all his team for making my journey smooth!

  • Samuel Taveras

  • Rena Ebrahim

  • nikoletta pados

    I am a physician who suffered from deep infiltrative endometriosis. I needed laparoscopic surgery, so I went to see my former gynaecologist and he performed the procedure (a surgery which he supposedly does hundreds of times a year) last November. I had severe pain again when I had my period in January and was advised to go on taking a…

  • Grace Larsen

    After years of excessively painful periods, a serious loss of quality of life, and a series of uninformed and uninterested doctors, Dr. Seckin and Dr. Goldstein turned my life around. I was told I woke up from my surgery almost a year ago with a smile on my face, and I haven't stopped since. Before I heard of Dr. Seckin,…

  • Nicole Novakowski

  • Jacqueline Galindo

    Dr Seckin and his team gave me back my life! Tomorrow will be 1 month since my surgery and I feel great. Dr. Seckin, Dr Liu, and Dr Goldstein are not only beyond words talented and amazing Doctors, but they are also genuinely wonderful and caring people. I cannot say enough great things about Holly, Asiye and Kim as well.…

  • Anna Lu

    Dr. Seckin and his staff spared me from years and years of heavy periods and unbearable endometriosis pain. After having surgery with him (my first) I can now function like a regular human. No more eating NSAIDs like candy and calling out sick from work. Thank you, Dr. Seckin!