One in 10 women has endometriosis but most aren't diagnosed with the disease until they're in their 30s and 40s. NY1's Erin Billups filed the following report.
Take what most women experience during their monthly periods - cramps, bloating, muscle aches - and multiply that by, say, 50, that's how bad it was for Casey Berna.
"I went to every sort of doctor, and no one gave me any answers," says Berna.
After colonoscopies, the removal of her appendix and gallbladder, fertility treatments and then pregnancy Berna's symptoms just got worse.
Even during surgery, doctors looking at her organs failed to notice signs of her endometriosis when the tissue that lines the uterus also grows on other organs.
"I had multiple miscarriages, gone through a lot of failed cycles, and my quality of life was terrible, and that's when I knew I needed to find a solution," recalls Berna.