Experts Gather To Highlight Endometriosis As A Public Health Priority!

Endometriosis Foundation of America (EFA) examines impact of disease on a global scale

NEW YORK, NY, April 18, 2016 -- The Endometriosis Foundation of America (EFA) began its 7th Annual Medical Conference; "Pursuing Precision with Passion" with a patient awareness day at Lenox Hill Hospital on Sunday. The EFA put out a clarion call to the public and the medical community to recognize the public health aspects of endometriosis.   The day featured disease and public health experts discussing diagnosis and disease impact to treatment considerations and research.

"Endometriosis is a disease with ramifications beyond debilitating pain. Global research shows it costs women some $230 in earnings and 10 hours of productivity each week," said Jhumka Gupta, ScD, epidemiologist and assistant professor at George Mason University Department of Global and Community Health, who spoke to the conference crowd.

“Many think that endometriosis is a disease only associated with painful periods. In truth, endometriosis causes a number of health issues,” said Dr. Tamer Seckin, founder of the EFA with Padma Lakshmi.  “It is the third leading cause of female infertility; and has been associated with a slight increased risk for ovarian cancer and just last month a new study linked it to a greater risk for heart disease, although the relationship is not clear.”

Dr. Gupta, whose research focuses on the public health impacts of violence against women, said, "A recent study shows that in some parts of the world, infertility, which is common among women with endometriosis, can increase women's vulnerability to experiencing violence from her husband." Gupta stated, "Like so many other pressing public health and human rights issues that impact women and girls, endometriosis is shrouded with stigma. The difference is, endometriosis is virtually absent from public health and social justice advocacy.  Endometriosis urgently needs more than awareness, but also action from our leaders. Everyone has the responsibility to ensure that women and girls aren't robbed of a great career, schooling, or social life because of endometriosis."  

Seckin said he could not agree more!  An endometriosis surgeon specializing in laparoscopic deep excision of endometriosis, Seckin said, “The disease needs to be destigmatized.  Women still don't talk about their periods openly, perhaps because society does not encourage this necessary conversation about women’s health.”

According to Seckin, a general lack of awareness combined with a ‘normalization’ of symptoms has made widespread advocacy for the disease nearly non-existent, and has caused an almost ten-year delay from when a woman first experiences symptoms until she eventually is diagnosed.  Seckin believes that strides are being made to bring endometriosis out of the shadows, but he says it is not fast enough and there is still a long way to go. 

“We need to create a better environment so women can find comfort in talking about their periods and other endometriosis symptoms openly, such as gastrointestinal disruptions and painful sex,” he said.  “This will only bring more awareness to the disease and in turn lead to better public policies to educate the medical community, fund landmark research and provide better diagnosis and treatment options.”

Seckin said the conference was streamed live and that it will be posted to the EFA website.  To learn more about endometriosis and the EFA visit endofound.org

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Tamer Seckin, MD, is an endometriosis specialist and surgeon in private practice in New York at Lenox Hill Hospital.  In 2009, he founded the Endometriosis Foundation of America (EFA), the first advocacy foundation organized by a practicing physician to raise awareness and emphasize the critical value of early diagnosis and excisional treatment of endometriosis. He is the author of “The Doctor Will See You Now; Recognizing and Treating Endometriosis” published March 2016.

Jhumka Gupta, ScD, is a social epidemiologist and Assistant Professor of Global and Community Health at George Mason University. Her research focuses on gender and health disparities, and on the epidemiology of the health impacts of violence against women. She has authored over 50 peer-reviewed publications on these topics. Dr. Gupta is particularly interested in vulnerable populations, such as communities of color and those impacted by humanitarian crises, both inside and outside of the United States

Endometriosis Foundation of America (EFA) was founded by Tamer Seckin, MD and Padma Lakshmi in 2009 and strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EFA places particular emphasis on the critical importance of early diagnosis and effective intervention, while simultaneously providing education to the next generation of medical professionals and their patients.

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  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

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    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

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    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

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    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Jason Curry

    My wife had her laparoscopic excision surgery to remove endometriosis with Dr. Seckin on Jan 30, 2014. She doesn't write online reviews so I'm writing this on her behalf. I accompanied her with each office visit she had. The staff--Lucy and Kim, are very friendly, warm and professional. Dr. Seckin was excellent in every capacity. He spent a lot of…

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  • Karen N

    I was diagnosed with Endometriosis at 19. I saw several Endometriosis "Specialists" since then, had a few laproscopic surgeries to "remove" the endometriosis and continued to be in pain. I had a hysterectomy in 2012 and was told this would stop the pain once and for all. No such luck! Tired of spending days in bed with a heating pad,…

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