Endometriosis Getting More Attention

Endometriosis Getting More Attention

By Ed Coghlan

The pain of Endometriosis is well known to women who suffer from it.

It affects 10% women of reproductive age globally and has prompted the collaboration between two leading non­profit organizations dedicated to the improvement of women’s health; the Endometriosis Foundation of America (EFA) and the American College of Obstetricians and Gynecologists (ACOG).

The issues they want to explore?

  • Collaborating for the full-scale expansion across all states of the EFA’s adolescent education program, The Endometriosis: Promoting Outreach and Wide Recognition (ENPOWR™) Project.
  • Implementing more robust efforts to improve the standards of diagnosis and care associated with endometriosis, particularly among young adults so as to reduce the current delay to diagnosis in the field of Adolescent Gynecology.
  • Improving training standards for surgeons on the techniques specific to endometriosis, such as proper recognition and excisional removal of the lesions.
  • Producing updated practice guidelines for the diagnosis and treatment of endometriosis.

Tamer Seckin, MD, FACOG, and Founder of Endometriosis Foundation of America (EFA), EFA Medical Director, Dr. Harry Reich, a pioneer in minimally invasive surgery for treating endometriosis; Dr. Ray Wertheim, endometriosis specialist; and Theresa Davidson, EFA Managing Director, met with ACOG’s Vice President for Practice, Dr. Christopher Zahn, and Director of Federal Affairs, Rachel Gandell Tetlow are all part of this awareness push.

“I am thrilled about collaborating with ACOG, as it is one of the most influential women’s reproductive health organizations in the nation, with the ability to make a tremendous impact on practice as a whole,” said Seckin. “Early diagnosis is crucial to detecting endometriosis and awareness is key to timely treatment. Working with ACOG, the EFA can expand its awareness campaign nationwide to reach so many more medical professionals and women.”

According to the Journal of Human Reproduction, women who suffer from endometriosis have to wait an average of 12 years before getting a proper diagnosis. “This is unacceptable, and it has to change,” said Seckin.  He added, “Misdiagnosis, dump diagnosis and ignoring or dismissing the symptoms of endometriosis, and incomplete and improper surgeries are the main reasons for the long delay in diagnosing, and treating the disease.”

Seckin talked about the pain associated with endometriosis.

“Endometriosis lesions can grow deep and wide, spreading and clinging to a woman’s uterus, appendix, rectum, ovaries, intestines, leg nerves and other parts of the pelvic region. These lesions are like leeches that attach to, reproduce on, and grow on whatever internal organs they find. They are similar to a slow-growing cancer that invades the organs in the pelvis, and in rare cases they can spread to the diaphragm, lungs, kidneys, or brain.”

“Endometriosis causes excruciating pain. This disease always causes inflammation, which can lead to adhesions, scarring, internal bleeding, bowel  or urinary dysfunction, constipation, painful intercourse, and infertility.  The physical pain can be so unbearable that it leads to psychological pain.  A woman’s career may suffer.  Relationships with loved ones may become strained.  She may have to miss a lot of school, or even drop out.  This disease threatens to become a woman’s identity, ruling every phase of her life.”

In March, EFA co­founder Padma Lakshmi met with congressional leaders on Capitol Hill to initiate discussions about more collaborative efforts to facilitate endometriosis awareness. “The collaboration between the EFA and ACOG is the first of what I hope will be many partnerships with the EFA,” said Seckin. “The EFA looks forward to creative partnerships both in the public and private sectors that will help spread the word out about this debilitating disease.”

Source: //nationalpainreport.com/endometriosis-getting-more-attention-8831005.html

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Patient Reviews

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  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

  • Emi O

    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…

  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…