The trials of teaching with Endo: ENDOSTRONG Patient of the Week

The trials of teaching with Endo: ENDOSTRONG Patient of the Week

The Never-Ending Period
When Dana first got her period at age 14, it wasn't too bad. But by the time she was in her early 20s, she would have terrible periods and would bleed heavily for 11-14 days. She felt like she her period would never end. The school nurse would just give her some naproxen and she was told by many, "Some people just have bad cycles. It is part of being a woman."

Pregnancy and Loss
When Dana and her husband started trying to conceive, they couldn’t have imagined the beauty and heartache that were in store for them. Although they have three healthy daughters, Dana also suffered four miscarriages.

As Dana got older, her period pain started getting worse and worse. As time passed, Dana developed an excruciating sciatic pain during menstruation. As a teacher, being on her feet all day, Dana found this pain especially difficult to manage. The pain was so bad she would spend many days driving home from work, screaming in agony in her car.

Dana’s sciatic pain became so bad that she went to a neurologist to try to figure out what was wrong with her. He told her it was most likely arthritis. She went back to her doctor one day in excruciating pain, hysterically crying, begging him to help her with her pain. The doctor told her he couldn’t help her, that the arthritis she had was not that progressed and could not be that bad and that the pain seemed to coincide with her cycle.
 
Dana did her own research on endometriosis and sciatic pain. She read that if left untreated, endometriosis on a patient’s sciatic nerve can cause permanent damage leading to a dropped foot or even worse outcomes.  She pictured herself having trouble dancing at her daughters’ weddings and felt devastated. Dana explained all of these findings to the doctor and he said, “Well, there are no studies to prove that. Dana replied, “It just means nobody has studied it yet.”

At this point Dana was having to take oxycodone for the pain and was missing school. She also suffered from migraines. The pill, Lupron, morena and the nuvaring were the solutions multiple gynecologists came up with.  After even further research Dana looked for answers elsewhere.

Off to New York City
Dana knew she needed help but felt no one near her home in Rhode Island could help her. She found Dr. Seckin’s website on line and emailed his office for information about sciatic pain and endometriosis. Through that email she connected with Dr. Seckin. Dana’s surgery with Dr. Seckin was extensive.  Her ovary has been attached to her bladder, her uterus had been devastated by adenomyosis and had to be removed. It took some time for Dana to recover but she is now back to yoga class and bike riding again.

A Family Affair
Dana is proof that there is merit to the theory that there is a genetic component to endometriosis. Based on her mom’s symptoms, Dana believes her mom most likely suffered from the disease, although never officially diagnosed. Dana also has a sister who suffers from the disease and another sister who she suspects has it but has not been diagnosed. As a mom to 3 daughters, Dana is committed to speaking out about the disease and hopes that in sharing her own story it will help other women. She would never want her daughters to suffer with this disease as long as she did. Dana feels it is so important to not fade into the background when it comes to managing your healthcare. She encourages patients to push their doctors for needed medical procedures and medications. She also feels it is important for women to know that painful periods are NOT normal.

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Patient Reviews

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  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

  • Emi O

    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…

  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…