The trials of teaching with Endo: ENDOSTRONG Patient of the Week

The Never-Ending Period
When Dana first got her period at age 14, it wasn't too bad. But by the time she was in her early 20s, she would have terrible periods and would bleed heavily for 11-14 days. She felt like she her period would never end. The school nurse would just give her some naproxen and she was told by many, "Some people just have bad cycles. It is part of being a woman."

Pregnancy and Loss
When Dana and her husband started trying to conceive, they couldn’t have imagined the beauty and heartache that were in store for them. Although they have three healthy daughters, Dana also suffered four miscarriages.

As Dana got older, her period pain started getting worse and worse. As time passed, Dana developed an excruciating sciatic pain during menstruation. As a teacher, being on her feet all day, Dana found this pain especially difficult to manage. The pain was so bad she would spend many days driving home from work, screaming in agony in her car.

Dana’s sciatic pain became so bad that she went to a neurologist to try to figure out what was wrong with her. He told her it was most likely arthritis. She went back to her doctor one day in excruciating pain, hysterically crying, begging him to help her with her pain. The doctor told her he couldn’t help her, that the arthritis she had was not that progressed and could not be that bad and that the pain seemed to coincide with her cycle.
 
Dana did her own research on endometriosis and sciatic pain. She read that if left untreated, endometriosis on a patient’s sciatic nerve can cause permanent damage leading to a dropped foot or even worse outcomes.  She pictured herself having trouble dancing at her daughters’ weddings and felt devastated. Dana explained all of these findings to the doctor and he said, “Well, there are no studies to prove that. Dana replied, “It just means nobody has studied it yet.”

At this point Dana was having to take oxycodone for the pain and was missing school. She also suffered from migraines. The pill, Lupron, morena and the nuvaring were the solutions multiple gynecologists came up with.  After even further research Dana looked for answers elsewhere.

Off to New York City
Dana knew she needed help but felt no one near her home in Rhode Island could help her. She found Dr. Seckin’s website on line and emailed his office for information about sciatic pain and endometriosis. Through that email she connected with Dr. Seckin. Dana’s surgery with Dr. Seckin was extensive.  Her ovary has been attached to her bladder, her uterus had been devastated by adenomyosis and had to be removed. It took some time for Dana to recover but she is now back to yoga class and bike riding again.

A Family Affair
Dana is proof that there is merit to the theory that there is a genetic component to endometriosis. Based on her mom’s symptoms, Dana believes her mom most likely suffered from the disease, although never officially diagnosed. Dana also has a sister who suffers from the disease and another sister who she suspects has it but has not been diagnosed. As a mom to 3 daughters, Dana is committed to speaking out about the disease and hopes that in sharing her own story it will help other women. She would never want her daughters to suffer with this disease as long as she did. Dana feels it is so important to not fade into the background when it comes to managing your healthcare. She encourages patients to push their doctors for needed medical procedures and medications. She also feels it is important for women to know that painful periods are NOT normal.

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Patient Reviews

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  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Jason Curry

    My wife had her laparoscopic excision surgery to remove endometriosis with Dr. Seckin on Jan 30, 2014. She doesn't write online reviews so I'm writing this on her behalf. I accompanied her with each office visit she had. The staff--Lucy and Kim, are very friendly, warm and professional. Dr. Seckin was excellent in every capacity. He spent a lot of…

  • Liz Filippelli

    He is an awesome doctor who saved my daughters life from debilitating endometriosis..she knew instantly upon awaking from surgery that she was better..that wad May and no complaints only praises for Dr. Wonderful Seckin!!

  • Karen N

    I was diagnosed with Endometriosis at 19. I saw several Endometriosis "Specialists" since then, had a few laproscopic surgeries to "remove" the endometriosis and continued to be in pain. I had a hysterectomy in 2012 and was told this would stop the pain once and for all. No such luck! Tired of spending days in bed with a heating pad,…

  • Lauren Rodriguez

    I researched and found Dr. Seckin after dealing with years of doctors who couldn't help me or refused to go the extra mile for their patients. I have to say I am truly blessed to have found such a compassionate and talented doctor. He is exquisite with everything he does, and both his team at the office and surgical team…

  • Kellya Vespa

    Dr. Seckin is a very skilled surgeon. There are not many doctors like him that truly understand the effects of endometriosis. I am lucky to have found him. The staff is wonderful too.

  • Meg Connolly

    Dr. Seckin truly LOVES what he does and cares about his patients from the bottom of his heart. My life has already changed in 3 weeks and I couldn’t be more grateful. Should I ever need another operation for endometriosis, Dr. Seckin will be the one to do it. I recommend him to anyone I come across with similar problems…

  • Elisandra O

    Dr. Seckin is an amazing Doctor he is very compassionate, caring and he will be honest with you. He's been my doctor for 19yrs and I am so grateful to have someone taking care of me that knows what he is doing and knows the best way to treat each and every situation. I would definitely recommend him and his…