Endometriosis and 5 stages of grief (Endometriosis Emotional Symptoms)

Endometriosis and 5 stages of grief (Endometriosis Emotional Symptoms)

Endometriosis is a chronic, painful disease that has a profound impact on every aspect of a woman’s life. Sometimes a woman can suffer with symptoms for more than half her life, depending on when she starts to menstruate and when she goes into menopause. That is a long time to be in pain and ultimately it can alter a patient’s emotional well-being. Dr. Seckin often refers his patients to see a psychologist to address the emotional needs of his patients. When your life revolves around a chronic illness such as endometriosis, there exists a loss of health and quality of life that you have to cope with.  Endometriosis patients deal with grief on a daily basis.

Dr. Elisabeth Kübler-Ross (July 8, 1926 – August 24, 2004) was a Swiss-born psychiatrist who first discussed the Stages of Grief as a pattern of adjustment that is now known as the Kübler-Ross model. In her book, On Death and Dying, she proposed that the five Stages of Grief are denial, anger, bargaining, depression, and acceptance.  As an endometriosis patient myself, who has often turned to a mental health professional for support, I find that these stages of grief can also be applied to endometriosis patients. What Dr. Elisabeth Kübler-Ross states for dying patients is also true for those of us facing endometriosis; “individuals experience most of these stages, though in no defined sequence, after being faced with the(ir) reality.”  Below I explore how the Stages of Grief can be applied to endometriosis patients in order to illuminate the complexities of how an endometriosis patient can be feeling on any given day.


Merriam-Webster defines denial as a “psychological condition in which someone will not admit that something sad, painful, etc., is true or real.” For a patient, denying that endometriosis is a serious disease that can impact a person’s daily life is sometimes easy to do when our society as a whole is completely in denial regarding the gravity of endometriosis.  Sometimes our families, co-workers and friends belittle endometriosis due to their own ignorance about the disease.  Our own gynecologists and other doctors are also in denial as to the gravity of the disease or sometimes even the existence of the disease! As patients we want to believe them. We wish that our pain was manageable and that our bodies were not failing us. As our symptoms get worse, we take more pain medications and keep going, not wanting to face the reality of yet another surgery.  We try to ignore the disease. We don’t want to believe that this disease can have lasting impact on not only our fertility, but our urinary, digestive and sometimes even our respiratory symptoms.  We deny until our symptoms finally make us feel scared or completely broken.


Endometriosis is one of THE most frustrating diseases out there, and there are many legitimate reasons for patients to be angry.  For myself, I know anger comes and goes.  It takes a lot of energy to be angry, and energy is not something many endometriosis patients have a lot of. There are systemic reasons to be angry:  “Why aren’t there any excision specialists in my area? Why won’t anyone take my disease seriously? How come no one has heard of my disease? Why isn’t there a cure? Why is no one talking about this disease?” There are also very personal reasons to be angry, ranging from the frustrating to the profound: “Why didn’t my first gynecologist properly treat and diagnose me a decade ago? Why can’t I JUST have sex with my partner without negative repercussions? Why can’t I go out when I want/eat what I want/exercise like I want?  Why can’t I take care of my kids like they need?  Why can’t I keep a job? Why do I need to have surgery all the time? Why can’t I leave my bed?” And for many women with endometriosis, one of the greatest losses to be angry about, “Why can’t I ever get pregnant or carry a baby to term?”


When trying to bargain with a disease like endometriosis, I feel like we are trying to bargain with the devil. Patients are constantly trying to bargain with this disease to no avail. We bargain for health, energy, and the ability to go places and do things. We bargain for fertility and the chance to have babies. If I eat right, exercise, try herbs, get rest, drink water, cut out caffeine,  go to acupuncture, yoga, or physical therapy, stop drinking alcohol, take all of my vitamins, and take awful prescribed drugs, maybe I will be okay? If I do all of these things, maybe the disease won’t spread and maybe I won’t have to have another surgery? We bend ourselves backwards and alter our lifestyles for the small hope that we can control the endometriosis, keep it at bay, beat it into submission. Although all of these tips may help daily symptoms and improve a patient’s quality of life, endometriosis is an insidious disease that for the most part cannot be bargained with.


Many women battling endometriosis are also battling clinical depression.  Many of the symptoms of endometriosis are eerily similar to symptoms of depression.  The Mayo Clinic states the following symptoms as warning signs for clinical depression: Irritability or frustration, even over small matters. Loss of interest or pleasure in normal activities. Reduced sex drive. Insomnia or excessive sleeping. Changes in appetite.  Slowed thinking, speaking or body movements. Indecisiveness, distractibility and decreased concentration. Fatigue, tiredness and loss of energy — even small tasks may seem to require a lot of effort. Feelings of worthlessness or guilt. Trouble thinking, concentrating, making decisions and remembering things. Frequent thoughts of death, dying or suicide. Crying spells for no apparent reason. There are physical limitations and exasperations that come with being in chronic pain and living with endometriosis, like slowed thinking, irritability and fatigue, which also mimic clinical depression.  There is also a natural sadness, fear and uncertainty when coming to terms with having an incurable, chronic disease and all of the lifestyle implications that follow. Feeling all of these emotions and more are so important.  It is vital for endometriosis patients to seek out support through mental health counseling, especially if there are thoughts about suicide or overwhelming hopelessness.  


Acceptance is a general feeling that although things are bad they are going to be okay. Acceptance is also the idea of embracing the disease instead of resisting it. This idea seemed foreign to me at first. We are always talking about how we are Endwarriors and how we will fight the disease with everything we have.  The problem with fighting or resisting the disease is that it is exhausting.  My own therapist recently said to me, “Surgery is like food and water to you. You need it to not only survive but thrive, so why not embrace it instead of fighting the need for it.” I am learning I have to choose my battles.

When I have the energy I will fight for endometriosis awareness. I will fight to educate those around me, my family, doctors, and others in the general community about endometriosis. I will fight for women who do not have access to good, quality care. I will fight for a cure. These are all positive outlets for my anger and helplessness. But I am through fighting with my endometriosis because I will not win. It exists in my body and I will accept that I cannot change it. The harsh reality is that with the exception of having an excellent and knowledgeable excision specialist in Dr. Seckin, there is little more I can do.  I will embrace my next surgery with Dr. Seckin because as hard as surgery is, it will help me. I will embrace my endodiet when I can because I know it will help to ease my symptoms. I will try and face this disease with courage, dignity and grace and survive it to thrive.
Many people feel that endometriosis is only a physical illness and they don’t recognize the emotional toll that a disease like this takes on a patient. Dr. Seckin often refers his patients to see a psychologist and has this same psychologist speak at the EFA Medical Conference every year.  Mental health is just as important as physical health, and patients are encouraged to seek the support of a mental health counselor to help cope with this disease. Dr. Elisabeth Kübler-Ross documented the Five Stages of Grief many years ago when having conversations with patients who were dying. As endometriosis patients, although we are not dying, we have many limitations to our quality of life. It is no wonder that we too feel grief when facing the daily challenges endometriosis poses.  These Stages of Grief can help us all understand our emotions as we strive to accept our disease and seek out the proper surgical treatment that will help us.

Casey Berna is a patient of Dr. Seckin’s and an endometriosis and infertility counselor and advocate. To learn more about her story and her practice go to www.CaseyBerna.com.  If you are a patient of Dr. Seckin’s and want to share your story please contact Casey at casey@drseckin.com.


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  • Sheena Wright

    I underwent surgery with Dr. Seckin in 2017 and have felt like a new woman ever since. If you have, or suspect you have endometriosis, Dr. Seckin and his compassionate team of surgeons and staff are a must-see.

  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

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    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…

  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…