Endo Strong Patient of the Week: Eve E.

Endo Strong Patient of the Week: Eve E.

The year was 1969, Eve was 13-years-old and experiencing her first period. She was in horrible pain. Her mother, never having a painful period, thought Eve was just trying to get out of school. Google did not exist. There were no online chat rooms or Facbeook groups that Eve could turn to. Bill Gates and Steve Jobs were still in high school at the time. Eve relied solely on the medical advice of doctors to help her figure out what was wrong. By the time Eve was 18, her pain was more intense. Eve searched for a gynecologist who could explain her horrible pain. This new doctor Eve found dismissed her saying, “Oh, it’s nothing,” but Eve knew something was wrong.

By her early 20s, Eve started experiencing a lot of diarrhea, in addition to her pain. She started feeling worse and worse. She found another doctor and after explaining her entire medical history to him, he did a sonogram. The sonogram showed that Eve had a cyst. At age 23, Eve had laparoscopic surgery to get the cyst removed. Her doctor told her she should now be feeling great.

But Eve wasn’t feeling great. To be able to endure the pain, Eve sought the comfort of two heating pads and relied heavily on naproxen. The year was 1980, and there was very little discussion about endometriosis and next to no awareness for the disease. She happened to come across Dr. Seckin, a young gynecologist working in Brooklyn, by chance. She started seeing him at the age of 25 and together they started working on her pain management and trying to discover the root of her pain. From the start, she felt he was warm and caring. Dr. Seckin made her comfortable. He believed her pain was real and wanted to know the cause.

Dr. Seckin decided to go in laparoscopically when Eve was 28. He discovered a cyst and finally diagnosed Eve with endometriosis. Eve continued under the care of Dr. Seckin and together they navigated this disease for over a decade. She had three more surgeries with Dr. Seckin, her last one at age 41.  

By the age of 45, Eve started missing periods. By the age of 48, Eve had lost her period completely and welcomed menopause. Menopause has brought her great relief but she still suffers from the occasional bought of diarrhea and leg cramping. She has found eating gluten-free helps her intestinal symptoms. Looking back, Eve ponders whether the radical hysterectomy her paternal grandmother had was related to endometriosis.

Eve feels that Dr. Seckin is a superb doctor. She gives him a tremendous amount of credit for wrapping his entire life around the research and treatment of endometriosis, spending most of his waking hours working with patients and researching it. She feels frustrated with doctors who do not keep up with the latest and most effective treatments and diagnostic tools.

Eve also talks about the loneliness she felt as a young woman growing up with the disease. She felt like she was the only person in the world who had it. She urges young women to use all of the online resources available to them. She also stresses that women should listen to the message their body is sending them, despite what doctors may say or the symptoms they may dismiss. She urges women to keep searching for answers, to take their lives back, no matter what the price.

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Patient Reviews

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  • Samuel Taveras

  • Rena Ebrahim

  • nikoletta pados

    I am a physician who suffered from deep infiltrative endometriosis. I needed laparoscopic surgery, so I went to see my former gynaecologist and he performed the procedure (a surgery which he supposedly does hundreds of times a year) last November. I had severe pain again when I had my period in January and was advised to go on taking a…

  • Grace Larsen

    After years of excessively painful periods, a serious loss of quality of life, and a series of uninformed and uninterested doctors, Dr. Seckin and Dr. Goldstein turned my life around. I was told I woke up from my surgery almost a year ago with a smile on my face, and I haven't stopped since. Before I heard of Dr. Seckin,…

  • Nicole Novakowski

  • Jacqueline Galindo

    Dr Seckin and his team gave me back my life! Tomorrow will be 1 month since my surgery and I feel great. Dr. Seckin, Dr Liu, and Dr Goldstein are not only beyond words talented and amazing Doctors, but they are also genuinely wonderful and caring people. I cannot say enough great things about Holly, Asiye and Kim as well.…

  • Anna Lu

    Dr. Seckin and his staff spared me from years and years of heavy periods and unbearable endometriosis pain. After having surgery with him (my first) I can now function like a regular human. No more eating NSAIDs like candy and calling out sick from work. Thank you, Dr. Seckin!

  • Sheena Wright

    I underwent surgery with Dr. Seckin in 2017 and have felt like a new woman ever since. If you have, or suspect you have endometriosis, Dr. Seckin and his compassionate team of surgeons and staff are a must-see.