Endo Strong Patient of the Week: Eve E.

Endo Strong Patient of the Week: Eve E.

The year was 1969, Eve was 13-years-old and experiencing her first period. She was in horrible pain. Her mother, never having a painful period, thought Eve was just trying to get out of school. Google did not exist. There were no online chat rooms or Facbeook groups that Eve could turn to. Bill Gates and Steve Jobs were still in high school at the time. Eve relied solely on the medical advice of doctors to help her figure out what was wrong. By the time Eve was 18, her pain was more intense. Eve searched for a gynecologist who could explain her horrible pain. This new doctor Eve found dismissed her saying, “Oh, it’s nothing,” but Eve knew something was wrong.

By her early 20s, Eve started experiencing a lot of diarrhea, in addition to her pain. She started feeling worse and worse. She found another doctor and after explaining her entire medical history to him, he did a sonogram. The sonogram showed that Eve had a cyst. At age 23, Eve had laparoscopic surgery to get the cyst removed. Her doctor told her she should now be feeling great.

But Eve wasn’t feeling great. To be able to endure the pain, Eve sought the comfort of two heating pads and relied heavily on naproxen. The year was 1980, and there was very little discussion about endometriosis and next to no awareness for the disease. She happened to come across Dr. Seckin, a young gynecologist working in Brooklyn, by chance. She started seeing him at the age of 25 and together they started working on her pain management and trying to discover the root of her pain. From the start, she felt he was warm and caring. Dr. Seckin made her comfortable. He believed her pain was real and wanted to know the cause.

Dr. Seckin decided to go in laparoscopically when Eve was 28. He discovered a cyst and finally diagnosed Eve with endometriosis. Eve continued under the care of Dr. Seckin and together they navigated this disease for over a decade. She had three more surgeries with Dr. Seckin, her last one at age 41.  

By the age of 45, Eve started missing periods. By the age of 48, Eve had lost her period completely and welcomed menopause. Menopause has brought her great relief but she still suffers from the occasional bought of diarrhea and leg cramping. She has found eating gluten-free helps her intestinal symptoms. Looking back, Eve ponders whether the radical hysterectomy her paternal grandmother had was related to endometriosis.

Eve feels that Dr. Seckin is a superb doctor. She gives him a tremendous amount of credit for wrapping his entire life around the research and treatment of endometriosis, spending most of his waking hours working with patients and researching it. She feels frustrated with doctors who do not keep up with the latest and most effective treatments and diagnostic tools.

Eve also talks about the loneliness she felt as a young woman growing up with the disease. She felt like she was the only person in the world who had it. She urges young women to use all of the online resources available to them. She also stresses that women should listen to the message their body is sending them, despite what doctors may say or the symptoms they may dismiss. She urges women to keep searching for answers, to take their lives back, no matter what the price.

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Reviews

  • Kim Molinaro

    Kim Molinaro

    Prior to meeting Dr. Seckin and reading his book, “The Doctor Will See You Now”, I knew little to nothing about endometriosis. I was led to believe that endometriosis was not a serious condition. I was told that the pain could be managed by taking the “pill”. I was told that the cysts on my ovaries were harmless. I was…

  • Rebecca Black

    Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…