Second-Generation Endometriosis Patient Shares Her Story

Second-Generation Endometriosis Patient Shares Her Story

As a child, Lauren can remember vividly her mom being sick with endometriosis. She can remember her surgery, her fatigue and her pain. Lauren’s mom explained a little bit about endometriosis to her and showed her the scar from surgery. Lauren had known about endometriosis her whole life.

Lauren can actually remember suffering with the endometriosis symptom of leg pain even before she got her period. Her pediatrician assured her that is was growing pains and that she needs to be more active. Lauren didn’t understand this advice because as a tomboy, she was always outside swimming and playing. When her period came at the age of 13, it was uncomfortable from the start and she felt extremely nauseous. She would go to the nurse at school who would tell Lauren eating would make her feel better, but she felt too sick to eat. Even with her family history of endometriosis, no one linked Lauren’s symptoms with the disease.

Lauren went on birth control right after high school. She stayed on it until she was 30. Even with this hormonal treatment, Lauren suffered with even more endometriosis symptoms. In her 20s, she had significant episodes of diarrhea and abdominal cramping. After tests showed nothing, her doctor diagnosed her with IBS. She also had frequent bladder and kidney infections. Again, her doctors did not see anything on her scans and told her that she should drink more water.

At the age of 30, Lauren went off the birth control pill to try to conceive, and that is when she started suffering even more.  By this time, she had adapted a healthier lifestyle, eating better and exercising. Yet, she still was felling terrible. Her leg pain was so severe that now any sort of extended walking hurt her legs and her pelvis. She was missing work during her period because she couldn’t get out of bed. She went to her doctor and talked about her symptoms and her mom’s history of endometriosis, and the doctor told her that all of what she was experiencing was normal and pushed to put her on pre-natal vitamins. A little voice inside of Lauren said, “There is something wrong here.”

The breaking point for Lauren was when she was hosting a dinner party and abruptly felt very ill. She ran to the bathroom and started vomiting from the pain and couldn’t get off the bathroom floor. Her guests had to leave and her and her husband talked about getting the help she needed. She went back to her gynecologist who told her that she couldn’t be helped there and had to see a reproductive endocrinologist to start IVF.

Lauren left that doctors practice and sought out the help of a “specialist” who told her to go back on the birth control pill. After being on it a few months without relief, Lauren went back to the specialist who referred her to another surgical specialist. This specialist wanted her on Lupron. Lauren fought hard for the surgical diagnosis she felt she needed. The surgeon went in and found endometriosis everywhere. He lasered what he could, but left much of it untouched. Upon waking, the doctor explained to Lauren that Lupron was her only option and the nurse came in and injected her with it while she was still groggy from surgery. What followed were 6 unpleasant months of recovering and dealing with the side effects of Lupron, which included memory loss, medical menopause and joint pain.

Lauren stopped Lupron and felt worse than ever.  She was in a bad place emotionally. She just got promoted at work, but feared she couldn’t even tolerate the car ride to get to work every day because she was in so much pain. She felt depressed. She had fought so hard with her surgeon to have her last surgery, yet nothing changed. She was out of hope and was in utter despair. She knew she needed more help. She researched endometriosis specialists and came across Dr. Seckin and his work with Padma Lakshmi. She researched excision surgery and it seemed logical to her that in order to feel better, the disease had to be cut out of her. She called the office and had an appointment with Dr. Seckin two weeks later.

Upon hearing her story, Dr. Seckin felt very bad how her other doctors treated her. After hearing her symptoms and doing her physical exams, Dr. Seckin knew that Lauren was very sick. Lauren was so overwhelmed that someone finally believed her. She was also shocked to hear that so many of her symptoms were endometriosis-related, including her lifelong excruciating leg pain. Lauren cried all the way home not believing that all this time she was searching for answers and in one visit, Dr. Seckin was able to give them to her. Noticing how upset Lauren was leaving the office, Dr. Seckin made sure to call Lauren that night to check in with her. He said to her, “We have to get you better.”

It was during Hurricane Sandy that Lauren had her surgery. Through the chaos and the devastation that was happening all around her in New Jersey, Lauren hoped that she would still be able to have surgery. She did her pre-op bowel prep in the dark, because she had no power. Lauren made it to the hospital and had her operation. She can vividly remember feeling so much better immediately after waking up from surgery. Dr. Seckin held her hand and said to her, “I don’t know how you lived like that.” Her leg pain which had haunted her for most of her life was gone.

Dr. Seckin and his team ended up removing a lot of endometriosis from her pelvis and also from her ilioinguinal nerve. He reconstructed her ovary and removed the adhesions between the uterus and her bowel. She also had obstructed kidneys and had to have endometriosis removed from her ureters. Her cul-de-sac was completely obliterated and her peritoneal wall had to be stripped down. Lauren said she felt like a phoenix being reborn after her surgery with Dr. Seckin. Her life completely changed that day and a year and a half after her surgery, she still feels 95% better.

It took Lauren a long time to process how sick she was and the harm that endometriosis is capable of. She has found physical healing through her surgery with Dr. Seckin but also has found emotional healing, connecting with other endometriosis patients. Lauren is on the board of the non-profit Endo Warriors and leads their New Jersey support group. She has found empowerment and support in speaking with other endometriosis patients. She feels that her story can help others. Before she met Dr. Seckin, she had lost all hope, she now likes to bring that sense of hope to others struggling. She urges women to trust their bodies and remember that pain is not normal in any way. She stresses that women need to educate themselves and listen to their instincts. She says, “never let anyone tell you what to do with your body.”

Casey Berna is a patient of Dr. Seckin’s and an endometriosis and infertility counselor and advocate. To learn more about her story and her practice go to  If you are a patient of Dr. Seckin’s and want to share your story please contact Casey at



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Patient Reviews

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  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

  • Emi O

    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…

  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…