Endometriosis Medical Conference

Endometriosis Medical Conference

Founder Tamer Seckin, MD, Teams Up with Top Medical Professionals to Talk about Sex...and Endometriosis...Seriously!

"We are here today to exchange options and ideas..." - EFA Founder, Tamer Seckin, MD on Day I of the 2nd Annual EFA Medical Conference

Over the weekend, global experts and opinion leaders on endometriosis came together from the realms of molecular science, research, industry, surgery and those struggling with the illness for the Endometriosis Foundation of America (EFA) Second Annual medical conference. Throughout both days of the conference, one significant message was clear: women are suffering, being misdiagnosed and continuously mistreated. Endometriosis is estimated to affect the lives of 1 out of 10 women, and although it may not be fatal, the disease holds devastating effects on the quality of life of a woman and all those in her life, personal and professional.

Chaired by EFA President, Tamer Seckin, MD, this event brought together an international panel of endometriosis experts along with Keynote Honorees, Caroline Gargett, BAppSci, MAppSci, PhD and David B. Redwine, MD, FACOG, ACGE, and expert speakers including Asgerally T. Fazleabas, PhD, Pinar Kodaman, MD, PhD, Linda Griffith, PhD, Keith Isaacson, MD, William Rodgers, MD, PhD, Victor Gomel, MD, Marta Meana, PhD, C.Y. Liu, MD, Harry Reich, MD, Resad Pasic, MD, Juan Salgado-Morales, MD and others.

At its core, the Foundation's second annual scientific symposium dared to tackle dyspareunia- a provocative, politically-charged conundrum that has never before been presented in a dedicated setting. Dyspareunia, a known symptom of Cul-de-Sac endometriosis, remains a largely ignored crisis of female sexual health and well-being. Defined as painful sexual intercourse, dyspareunia is one of the many devastating symptoms that affects women in their most sexually active years, yet is rarely addressed.  Lone Hummelshøj, Chief Executive of the World Endometriosis Research Foundation, revealed the far-reaching effects of dyspareunia on the patient - from her psychological well-being, self-esteem and body image to her relationships - in her presentation "Sex in the Morning? Perhaps not for Women with Endometriosis!" Driving her point home, Hummelshøj pointed to the World Health Organization's earlier determination that a satisfying and safe sex life is, in fact, a "fundamental human right." Hummelshøj also led a patient workshop, Painful Sex, encouraging open discussion with attendees and demonstrating that dyspareunia is a couple's problem, not only limited to only the woman - making communication key.

The first day of the conference was comprised of a scientific and surgical symposium, in which healthcare providers and women's health professionals who attended as delegates had the crucial opportunity to learn from the renowned faculty; it is the Foundation's mission that such education be applied in those individuals' own practices in order to improve the delivery of care to their endometriosis patients. During the first session, "Biochemistry & Molecular Science of Endometriosis," famed Pathologist William Rodgers, MD, PhD illustrated the significance of an ongoing project of the Foundation-the establishment of a Tissue Procurement Facility.  As Dr. Rodgers explained, studies on endometriosis cannot be done effectively without actual samples of the tissue, which are often lost in such surgical approaches as vaporization. In correspondence with these efforts, Linda Griffith, PhD and Keith Isaacson, MD of the MIT Center for Gynepathology Research, discussed current research efforts toward an understanding of the cues and signals of the disease, studying patient samples and comparing similarities and differences.  The world's foremost authority on stem cell research, Caroline Gargett, BAppSci, MAppSci, PhD, also presented her critical data concerning the role of endometrial stem cells in gynecological disease and how they can be targeted for potential treatment of the disease.

EFA Co-Founder Padma Lakshmi took the stage Friday to thank attendees and ask if those present would continue to "help us by spreading the word...be our soldiers in the field...so that younger generations of women do not go through what I went through."

Introducing session two, "Love, Sex, Happiness & Endometriosis," international microsurgery pioneer Victor Gomel, MD spoke of the urgent necessity for comprehensive disease education and understanding within the medical community.  Dr. Gomel emphasized that a surgeon treating endometriosis must have the appropriate knowledge and interest in this field coupled with the willingness to follow a patient, in order to truly evaluate the effectiveness of her care. In his landmark presentation, Asteroid Detection, HOX Genes & Endometriosis, Dr. David Redwine reiterated the enigmatic nature of the disease-endometriosis is positionally static, following a pattern as it develops, rather than simply spreading at random; in tandem with this, aggressive excision has been demonstrated clearly to be the best option for satisfactory patient outcome. In concurrence with Dr. Redwine's lecture, world-renowned surgeon Harry Reich, MD emphasized that medical treatment "never works, though it is looked at favorably by the health care industry due to costs."  Dr. Reich reiterated the message that excision surgery is essential to fighting against this disease.

Opening the second day, conference moderator Heather Roppolo-Guidone, EFA's Chief Medical & Science Coordinator and Saturday Co-Chair, encouraged participating patients to take advantage of the open forum, saying "if we don't speak for ourselves, no one will speak for us." Recounting the origins of the conference, Dr. Seckin explained to the audience, "you are the reason that we got this going...we saw that patients were not being treated properly...we saw that we were missing things...and not being taught how to properly treat you."  He also reemphasized the mission of the Foundation: "we need to create awareness, along with education...I continue to look for the truth."  The patient-centric theme of Saturday's workshops encouraged extensive dialogue between attendees and panel experts.  The novel event - the first of its kind in the United States - gave patients and caregivers unparalleled access to leaders on the disease, affording the opportunity to exchange ideas, ask for guidance, share suggestions, and most importantly, allow women's voices to be heard.

Currently, in addition to ongoing research projects and awareness efforts, the Endometriosis Foundation of America is looking ahead to next year's Conference, Going to the Roots.

The Endometriosis Foundation of America (EFA) is a nonprofit organization focused on fighting against the devastating effects of a disease that affects millions of women and adolescent girls. Through increased awareness, education, research and legislative advocacy, the EFA is committed to improving affected individuals' lives by early detection and treatment.

For further information, please visit www.endofound.org.



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Patient Reviews

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  • Sheena Wright

    I underwent surgery with Dr. Seckin in 2017 and have felt like a new woman ever since. If you have, or suspect you have endometriosis, Dr. Seckin and his compassionate team of surgeons and staff are a must-see.

  • Angela Aro

    I have struggled with endometriosis and adenomyosis since first starting my period at 13. I was diagnosed at 21 and what followed was a series of unsuccessful surgeries and treatments. My case was very aggressive and involved my urinary tract system and my intestines. After exhausting all of my local doctors I was lucky enough to find Dr. Seckin. We…

  • Emi O

    Seckin and Dr. Goldstein changed my life!

  • Kristin Sands

    Like so many women who have tirelessly sought a correct diagnosis and proper, thorough medical treatment for endometriosis, I found myself 26 years into this unwanted journey without clear answers or help from four previous gynecological doctors and two emergency laparoscopic surgeries. I desperately wanted to avoid the ER again; a CT scan for appendicitis also revealed a likely endometrioma…

  • Wilfredo Reyes

    Dr. Seckin literally gave my wife her life back. I am eternally grateful to him for his generous, determined spirit to see that Melanie finally live free from the prison bonds of Endometriosis.

  • Carla

    I am so grateful to Dr Seckin and Dr. Goldstein. My experience was nothing short of amazing. I was misdiagnosed with the location of my fibroids and have had a history of endometriosis. Dr. Seckin was the one who accurately diagnosed me. Dr Seckin and Dr. Goldstein really care about their patients and it shows. They listened to my concerns,…

  • Melissa Boudreau

    When I think of Dr. Seckin these are the words that come to mind. Gratitude, grateful, life-changing, a heart of gold. I feel compelled to give you a bit of background so you can understand the significance of this surgery for me. I am passionate about Endometriosis because it has affected me most of my life and I have a…

  • Jaclyn Harte

    Dr. Seckin and Dr. Goldstein radically changed my quality of life. They treat their patients with dignity & respect that I've personally never seen in the literally 25+ doctors I've seen for endometriosis. This summer, I had a surgery with Dr. Seckin & Goldstein. It was my first with them, but my 5th endo surgery. I couldn't believe the difference,…

  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…