Endometriosis Medical Conference

Endometriosis Medical Conference

Founder Tamer Seckin, MD, Teams Up with Top Medical Professionals to Talk about Sex...and Endometriosis...Seriously!

"We are here today to exchange options and ideas..." - EFA Founder, Tamer Seckin, MD on Day I of the 2nd Annual EFA Medical Conference

Over the weekend, global experts and opinion leaders on endometriosis came together from the realms of molecular science, research, industry, surgery and those struggling with the illness for the Endometriosis Foundation of America (EFA) Second Annual medical conference. Throughout both days of the conference, one significant message was clear: women are suffering, being misdiagnosed and continuously mistreated. Endometriosis is estimated to affect the lives of 1 out of 10 women, and although it may not be fatal, the disease holds devastating effects on the quality of life of a woman and all those in her life, personal and professional.

Chaired by EFA President, Tamer Seckin, MD, this event brought together an international panel of endometriosis experts along with Keynote Honorees, Caroline Gargett, BAppSci, MAppSci, PhD and David B. Redwine, MD, FACOG, ACGE, and expert speakers including Asgerally T. Fazleabas, PhD, Pinar Kodaman, MD, PhD, Linda Griffith, PhD, Keith Isaacson, MD, William Rodgers, MD, PhD, Victor Gomel, MD, Marta Meana, PhD, C.Y. Liu, MD, Harry Reich, MD, Resad Pasic, MD, Juan Salgado-Morales, MD and others.

At its core, the Foundation's second annual scientific symposium dared to tackle dyspareunia- a provocative, politically-charged conundrum that has never before been presented in a dedicated setting. Dyspareunia, a known symptom of Cul-de-Sac endometriosis, remains a largely ignored crisis of female sexual health and well-being. Defined as painful sexual intercourse, dyspareunia is one of the many devastating symptoms that affects women in their most sexually active years, yet is rarely addressed.  Lone Hummelshøj, Chief Executive of the World Endometriosis Research Foundation, revealed the far-reaching effects of dyspareunia on the patient - from her psychological well-being, self-esteem and body image to her relationships - in her presentation "Sex in the Morning? Perhaps not for Women with Endometriosis!" Driving her point home, Hummelshøj pointed to the World Health Organization's earlier determination that a satisfying and safe sex life is, in fact, a "fundamental human right." Hummelshøj also led a patient workshop, Painful Sex, encouraging open discussion with attendees and demonstrating that dyspareunia is a couple's problem, not only limited to only the woman - making communication key.

The first day of the conference was comprised of a scientific and surgical symposium, in which healthcare providers and women's health professionals who attended as delegates had the crucial opportunity to learn from the renowned faculty; it is the Foundation's mission that such education be applied in those individuals' own practices in order to improve the delivery of care to their endometriosis patients. During the first session, "Biochemistry & Molecular Science of Endometriosis," famed Pathologist William Rodgers, MD, PhD illustrated the significance of an ongoing project of the Foundation-the establishment of a Tissue Procurement Facility.  As Dr. Rodgers explained, studies on endometriosis cannot be done effectively without actual samples of the tissue, which are often lost in such surgical approaches as vaporization. In correspondence with these efforts, Linda Griffith, PhD and Keith Isaacson, MD of the MIT Center for Gynepathology Research, discussed current research efforts toward an understanding of the cues and signals of the disease, studying patient samples and comparing similarities and differences.  The world's foremost authority on stem cell research, Caroline Gargett, BAppSci, MAppSci, PhD, also presented her critical data concerning the role of endometrial stem cells in gynecological disease and how they can be targeted for potential treatment of the disease.

EFA Co-Founder Padma Lakshmi took the stage Friday to thank attendees and ask if those present would continue to "help us by spreading the word...be our soldiers in the field...so that younger generations of women do not go through what I went through."

Introducing session two, "Love, Sex, Happiness & Endometriosis," international microsurgery pioneer Victor Gomel, MD spoke of the urgent necessity for comprehensive disease education and understanding within the medical community.  Dr. Gomel emphasized that a surgeon treating endometriosis must have the appropriate knowledge and interest in this field coupled with the willingness to follow a patient, in order to truly evaluate the effectiveness of her care. In his landmark presentation, Asteroid Detection, HOX Genes & Endometriosis, Dr. David Redwine reiterated the enigmatic nature of the disease-endometriosis is positionally static, following a pattern as it develops, rather than simply spreading at random; in tandem with this, aggressive excision has been demonstrated clearly to be the best option for satisfactory patient outcome. In concurrence with Dr. Redwine's lecture, world-renowned surgeon Harry Reich, MD emphasized that medical treatment "never works, though it is looked at favorably by the health care industry due to costs."  Dr. Reich reiterated the message that excision surgery is essential to fighting against this disease.

Opening the second day, conference moderator Heather Roppolo-Guidone, EFA's Chief Medical & Science Coordinator and Saturday Co-Chair, encouraged participating patients to take advantage of the open forum, saying "if we don't speak for ourselves, no one will speak for us." Recounting the origins of the conference, Dr. Seckin explained to the audience, "you are the reason that we got this going...we saw that patients were not being treated properly...we saw that we were missing things...and not being taught how to properly treat you."  He also reemphasized the mission of the Foundation: "we need to create awareness, along with education...I continue to look for the truth."  The patient-centric theme of Saturday's workshops encouraged extensive dialogue between attendees and panel experts.  The novel event - the first of its kind in the United States - gave patients and caregivers unparalleled access to leaders on the disease, affording the opportunity to exchange ideas, ask for guidance, share suggestions, and most importantly, allow women's voices to be heard.

Currently, in addition to ongoing research projects and awareness efforts, the Endometriosis Foundation of America is looking ahead to next year's Conference, Going to the Roots.

The Endometriosis Foundation of America (EFA) is a nonprofit organization focused on fighting against the devastating effects of a disease that affects millions of women and adolescent girls. Through increased awareness, education, research and legislative advocacy, the EFA is committed to improving affected individuals' lives by early detection and treatment.

For further information, please visit www.endofound.org.



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Patient Reviews

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  • Megan Rafael Moreno

    I was in pain for 2 years. I was getting no answers, and because dr Goldstein and dr seckins were willing to see and treat me I'm finally feeling almost back to normal. They were very down to earth and helpful in my time of need. Dr Goldstein was easy to talk to and caring, she took care of me…

  • Nancy Costa

    Dr. Seckin is one of the best endometriosis surgeon. Every time I go to the office, he really listens to me and is always concerned about my issues. Dr Seckin's office staff are a delight and they always work with me. I feel I can leave everything to them and they will take care of it. Thank you to the…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Jason Curry

    My wife had her laparoscopic excision surgery to remove endometriosis with Dr. Seckin on Jan 30, 2014. She doesn't write online reviews so I'm writing this on her behalf. I accompanied her with each office visit she had. The staff--Lucy and Kim, are very friendly, warm and professional. Dr. Seckin was excellent in every capacity. He spent a lot of…

  • Liz Filippelli

    He is an awesome doctor who saved my daughters life from debilitating endometriosis..she knew instantly upon awaking from surgery that she was better..that wad May and no complaints only praises for Dr. Wonderful Seckin!!

  • Karen N

    I was diagnosed with Endometriosis at 19. I saw several Endometriosis "Specialists" since then, had a few laproscopic surgeries to "remove" the endometriosis and continued to be in pain. I had a hysterectomy in 2012 and was told this would stop the pain once and for all. No such luck! Tired of spending days in bed with a heating pad,…

  • Lauren Rodriguez

    I researched and found Dr. Seckin after dealing with years of doctors who couldn't help me or refused to go the extra mile for their patients. I have to say I am truly blessed to have found such a compassionate and talented doctor. He is exquisite with everything he does, and both his team at the office and surgical team…

  • Kellya Vespa

    Dr. Seckin is a very skilled surgeon. There are not many doctors like him that truly understand the effects of endometriosis. I am lucky to have found him. The staff is wonderful too.

  • Meg Connolly

    Dr. Seckin truly LOVES what he does and cares about his patients from the bottom of his heart. My life has already changed in 3 weeks and I couldn’t be more grateful. Should I ever need another operation for endometriosis, Dr. Seckin will be the one to do it. I recommend him to anyone I come across with similar problems…

  • Elisandra O

    Dr. Seckin is an amazing Doctor he is very compassionate, caring and he will be honest with you. He's been my doctor for 19yrs and I am so grateful to have someone taking care of me that knows what he is doing and knows the best way to treat each and every situation. I would definitely recommend him and his…