A Complex Case:Thoracic Endo and Catamenial Pneumothorax

A Complex Case: Thoracic Endo and Catamenial Pneumothorax

For 23 years, Latia Lee struggled with periods so bad she would down double doses of Advil and Tylenol. She missed chunks of school and work every month and scheduled events and vacations around her period. But with those periods came unexplained symptoms like chest tightness, shoulder pain, and chest pain. She went on countless doctors visits to OB-GYN’ s, pulmonologists and even cardiologists. Still, none had the answer to what ailed her.

That all changed in 2017, when Lee, 38, Googled endometriosis excision specialist in NYC and found world renown endometriosis specialist Dr. Tamer Seckin. “ I told Dr. Seckin, I know I have pelvic endometriosis I know I have catamenial pneumothorax I know I have thoracic endometriosis— i just need you to help me.”

Catamenial pneumothorax occurs when a lung collapses in conjunction with a menstrual period. To date, Lee has suffered through four. Thoracic endometriosis occurs when there are endometriosis lesions in the thoracic cavity, which would also explain Lee’ s chest tightness.

RELATED:The Woman Was Fit and Healthy, Why Did Her Lung Mysteriously Collapse?

Soon after her initial appointment, Seckin lept into action, and in January 2017, he and a team of six specialists including colorectal surgeon Dr. Parswa Ansari, Thoracic Surgeon Christos Stavropoulos, and Urologist Michael Brodherson combined their expertise to perform a 7-hour long endometriosis excision surgery.

Endometriosis lesions (as later confirmed by pathology) were found in Lee’ s lungs, and diaphragm. Next, it was on to the pelvis. Seckin and his team removed endometriosis from Lee’ s ureters, and endo had infiltrated her bowels so deeply that she needed a bowel resection. Endo also bound her appendix, ilium, and cecum. She needed an ileocecectomy, or removal of the ileum and part of the colon, as well as an appendectomy.

After the procedure, Seckin met with Lee and confirmed she had Stage IV Endometriosis. But he said, “ If there was a Stage V or Stage VI [Endometriosis] that would be you.”

With 23 years of pain and suffering behind her, today, Lee, a registered nurse at Weill Cornell Medicine, says she feels like a new woman and is already looking forward to the next chapter.

“ If I can’ t have a baby, ” shares Lee, “ then I’ ll adopt. I definitely want to be a mom.”

Lee is just one of Dr. Seckin’ s patients who suffer from thoracic endometriosis and catamenial pneumothorax. New York Times Magazine  recently profiled Dr. Seckin for a 5-hour long operation that he performed with Dr. Byron Patton, a thoracic surgeon, on a patient who suffered from catamenial pneumothorax so terribly she carried an oxygen tank with her.

 

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Patient Reviews

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  • Kim Molinaro

    Prior to meeting Dr. Seckin and reading his book, “The Doctor Will See You Now”, I knew little to nothing about endometriosis. I was led to believe that endometriosis was not a serious condition. I was told that the pain could be managed by taking the “pill”. I was told that the cysts on my ovaries were harmless. I was…

  • Rebecca Black

    Fast forward 5 years to find out incidentally I had a failing kidney. My left kidney was only functioning at 18%. During this time, I was preparing all my documents to send to Dr. Seckin to review. However, with this new information I put everything on hold and went to a urologist. After a few months, no one could figure…

  • Monique Roberts

    I'll never stop praising Dr. Seckin and his team. He literally gave me back my life.

  • Erin Brehm

    I had a wonderful experience working with Dr. Seckin and his team before, during and after my surgery. I came to Dr. Seckin having already had laparoscopic surgery for endometriosis 5 years prior, with a different surgeon. My symptoms and pain had returned, making my life truly challenging and my menstrual cycle unbearable. Dr. Seckin was quick to validate my…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Anita Schillhorn

    I came to Dr. Seckin after years of dealing with endometriosis and doctors who didn't fully understand the disease. He quickly ascertained what needed to be done, laid out the options along with his recommendation and gave me the time to make the right decision for me. My surgery went without a hitch and I'm healing very well. He and…

  • Nicholette Sadé

    Dr. Seckin brought me back to life! I am now 3 weeks into my recovery after my laparoscopy surgery, and I feel like a new and improved woman! Being diagnosed with Endometriosis, then 25yrs old in 2015, and discovering the severity of my case being stage 4, made me devastated. Dr. Seckin's vast knowledge of the disease, sincere empathy, and…

  • Jason Curry

    My wife had her laparoscopic excision surgery to remove endometriosis with Dr. Seckin on Jan 30, 2014. She doesn't write online reviews so I'm writing this on her behalf. I accompanied her with each office visit she had. The staff--Lucy and Kim, are very friendly, warm and professional. Dr. Seckin was excellent in every capacity. He spent a lot of…

  • michele curcio

    Dr.Seckin has saved me! My quality of life has improved tremendously! I have my life back plus! I am pain free and with this struggle i had with Endo all of my life, it is incredible to be NORMAL! Ever ever ever so grateful! God bless this man!

  • A Google User

    My daughter was recently treated by Dr. Seckin for endometriosis and I feel blessed that she found Dr. Seckin. The surgery was such a different experience than the prior surgery performed by another physician. Her post operative recuperation was so much better, immediately from the recovery room to the time she was able to return to work. She has much…

  • Liz Filippelli

    He is an awesome doctor who saved my daughters life from debilitating endometriosis..she knew instantly upon awaking from surgery that she was better..that wad May and no complaints only praises for Dr. Wonderful Seckin!!

  • Karen N

    I was diagnosed with Endometriosis at 19. I saw several Endometriosis "Specialists" since then, had a few laproscopic surgeries to "remove" the endometriosis and continued to be in pain. I had a hysterectomy in 2012 and was told this would stop the pain once and for all. No such luck! Tired of spending days in bed with a heating pad, …

  • Lauren Rodriguez

    I researched and found Dr. Seckin after dealing with years of doctors who couldn't help me or refused to go the extra mile for their patients. I have to say I am truly blessed to have found such a compassionate and talented doctor. He is exquisite with everything he does, and both his team at the office and surgical team…